December 18, 1995 – seems like yesterday

Even though its been quite a long time … just over sixteen years in fact, I can remember like it was yesterday. It was late October 1995 and Hannah had a bad cold. Hannah’s Mom is asthmatic so in the middle of the night when none of us were sleeping Kathy said we were taking [...]

Where The Birds Always Sing ~ The Cure

One of my favourite bands is The Cure. A few years ago I was rediscovering some of their music when I came across a song titled “Where The Birds Always Sing”. I think the first time I really listened to it was around the time when one of my kids died … Listening to it [...]

Camp Ooch at Southlake

I’ve been active in childhood cancer causes for quite a while. I’ve found so many of the other parents of children with cancer are just as passionate as I am about childhood cancer and the ones I’ve met from The James Fund, passionate about neuroblastoma. So many of us, once our child’s treatment is finished [...]

Guilt revisited and Megan McNeil’s passing

In the last post I spoke of guilt and how it affects the parents of survivors of childhood cancer. Just after I wrote that I read on Facebook about the passing Megan McNeil. Talk about feeling the huge pangs of guilt that day. Then that evening I was at a volunteer appreciation dinner and was [...]

Just one example of A Parents Guilt

As I’ve said in previous writings this blog is about, for the most part, neuroblastoma although I will delve into childhood cancer in general from time to time. I’m writing today about guilt. In so many cases of childhood cancers the cancer is fast growing and aggressive and by the time a child is diagnosed [...]

Welcome to The James Fund for Neuroblastoma Research Blog

Are there people in your life you wished you never knew? Most of us know at least one person we wished we didn’t and typically it’s because those people cause us some type of grief.  I know of a couple of people like that in my life but there is a large group of people [...]

How I met the people I wished I never did but am glad I did

So, the people in my life I wished I never had met but am glad I have, let me tell you how I met most of them. For the past four years The James Fund has hosted a Neuroblastoma Family Retreat. This retreat brings together neuroblastoma families from all over. One year there was a [...]